Running 500 Miles for SMA

There is an app out there called Timehop. I am not big on revisiting the past other than for purposes to mark achievement. I often speak to running/walking groups to talk about goal setting and maintaining motivation. I preach the basics of forgiving yourself, be kind to yourself and let the past go. Mistakes happen, move on. Except for measurement. I think TIME  is a marvellous tool for measuring progress. For example, 2010 I couldn’t walk up the stairs without major effort. Getting out of the bathtub was hard for me. As you all know, I started moving more and eating less. I am 117lbs further away from 2010. It amazes me.

I was flipping through TimeHop and came across a photo of my desk piled high in books and papers as I was writing my Capstone.

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This photo made me pause. I suddenly remembered all the steps that got me to this point.

I needed a project to work on for my final project. So I called my pal Joe because he often asks me the kind of questions that inspires me to think out of the box. We began talking about goals and future projects that would be huge or at the very least, take serious time and effort to complete. He disclosed that he would like to ‘one day’ run from the Walt Disney Family Museum in San Francisco to the esplanade in Disneyland Resort. I said, “Lets do it!” So we started planning and this became my Capstone project. Project Planning on an epic scale. I got an A+ but something else happened.

We started a foundation called Do Away with SMA. Part of this adventure was because if you are going to do something big, do it for a great cause. Joe’s family was personally affected by SMA so we decided to make this personal and choose that cause to work for. Why? Because other charities that you hear about are just that…charities that you hear about. They have a name and are doing well and meeting their goals. Apparently, Joe and I are two individuals that who like to go big or go home. Starting from scratch is a big deal for us. So, with the support of our families and friends, here we are. Co-Founders with the help of our friends in the foundation DAWS. All because we thought it might be fun to run 500 miles for charity.

Boom.

Its suddenly a reality.

This August is when it all happens. The way my life has turned really makes me blink with shock and awe. Whose life is this anyways? How did I get to this point? This is definitely not the old me. The new me is a very different person from 10 or even 5 years ago.

I invite you to follow our adventure on our blog at www.doawaywithsma.org. I will post adventures here and we will have a photo gallery on Facebook. Here is a link to our Crowdrise page that is raising money specifically to support this adventure. We hope to secure corporate support and raise money to help us fund this run as well as raise money to for our foundation. The Foundation support is found here .  That Cutie on the page is Claire. Claire has SMA. We met her Aunt through our Running Team and we heard amazing stories and saw adorable photos and suddenly SMA became REAL to the board. It was always real for Joe, his brothers died from SMA Type 1, but Claire is a typical kid living with an Atypical genetic disease. Now it is more important than ever that we raise money to support DAWS. We want to support kids like Claire in making every day tasks easier and to support researchers so they may find a cure. We want SMA to be eradicated. That is why Joe is running 500 miles. For kids like Claire.

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Here is what I hope to achieve by doing this grand adventure:

Raise money for our Foundation DAWS so we can help fund research and support parents and children who are living with SMA. 

Support Joe as he runs really far. Between you an me, he gets cranky when he is tired so this may be a challenge for me. See how I make it about me? Because I am awesome like that.

Share all kinds of daily adventures because you can’t run a marathon everyday and have nothing happen.

See the Coast of California. I haven’t been there since I was a kid. It should be a beautiful scenic adventure!

Meet amazing people along the way both on the road and in social media. 

I suspect this will be one of those life changing moments that teaches you about yourself and your friends. Joe’s Road Crew has 3 of us on board for support, food and fights   companionship. The off road support has many more….who may get calls from me as I will need to talk to people who don’t live in the car with me.

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There are 2 ways to support.

1. You can donate directly to 500 Miles for SMA. When your donation reaches different levels, there are gifts that coincide with the donation level.

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2. You can donate DIRECTLY to the Foundation. We have lofty goals for finding a cure and supporting families and their children. That gets expensive. The great news is, Do Away with SMA is a 501(c)(3) charitable foundation. That means I copy the legalese here for your reading pleasure:

The Do Away with SMA Foundation is a public charity and is tax exempt under Section 501 (c) (3) of the Internal Revenue Code. All donations made to the foundation may be deducted from your federaly taxable income to the extent permited by law. You should contact a tax professional to determine whether and to what extent donations are deductable under your particular circumstance.

 

This August is SMA Awarness Month. I invite you to come and cheer Joe on along the route. Here are our projected dates and places.

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I will be posting our location with video and photos and stories of our adventure. We hope you will join us.

We simply want to help as many people as we can, and play a part in defeating this disease. When I run, I always remember the faces of my younger brothers. ~Joseph R Kolinksy

Look for us here:

DAWSfacebook-logoinstagram-logo-vector-image10563174_1069997636362126_3316911294968633912_n11119531_842698832491196_2374805040860945477_oLOGO: Twitter. twitter logo-1024x1002.jpgCrowdrise_logo_151x48-1

 

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